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Avainsana: Duchenne

Minä syömässä lettuja.
Posted on 14 elokuun, 202521 elokuun, 2025 Pietari

40-vuotta täyteen – ”huikea saavutus”

40-vuotta täyttä elämää on hieno saavutus Duchennen lihasdystrofian kanssa. Nyt on siis aika juhlia tätä saavutusta.

Posted on 19 heinäkuun, 202328 elokuun, 2023 Pietari

Miltä elämä tuntuu huonoina hetkinä?

Miltä elämä tuntuu huonoina hetkinä? Tässä jutussa yritettiin käydä läpi näitä tuntemuksia, mutta tulikohan siitä yhtään mitään.

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