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Avainsana: lihassairaus

Posted on 6 syyskuun, 201821 toukokuun, 2019 Pietari

Royn täytyy selvitä – Tämä koskettava dokumentti lihassairaasta vauvasta kannattaa katsoa

Katsottiin YLE Areenasta hyvin mielenkiintoinen sekä koskettava dokumentti; Royn täytyy selvitä. Dokumentti kertoo ruotsalaispojasta, joka sairastaa parantumatonta lihastautia nimeltä SMA1.

Posted on 21 elokuun, 201429 maaliskuun, 2015 Maiju

Lehdistötiedote: Ilo elää – Runokirja nuoren lihassairaan naisen elämästä

Ilo elää runokirja sisältää nuoren lihassairaan naisen kirjoittamia runoja elämästä. Runokirjan lukija pääsee kokemaan runoilijan kipuilevia tunteita ja toivonhippuja.

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