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Avainsana: nuori

Leikkaukset on suoritettu.
Posted on 27 tammikuun, 202227 tammikuun, 2022 Pietari

Duchennen lihasdystrofia lapsella ja nuorella – Mitä sanoisin heille?

Duchennen lihasdystrofia lapsella ja nuorella. Tähän juttuun idea syntyi, kun sain seuraavan viestin: kiinnostaisi tietää mitä haluaisit sanoa lapselle, joka sairastaa duchennea tai nuorelle itsellesi...

Posted on 4 lokakuun, 20184 lokakuun, 2018 Pietari

Usko itseesi, se kannattaa

Nuorempana ja toivottavasti myös tyhmempänä minä ajattelin, että kuolen viimeistään kolmekymppisenä. Tämä johtui siitä, että valitettavasti moni Duchennea sairastava kuolee jo ennen sitä.

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